Soul Sunday

As you may have guessed, the complications with our youngest son’s epilepsy continues. We spent the last three days at the hospital, thus I have not been writing my daily blog. We are all okay. Our son is back home with us now. (just where a college junior wants to be – back home with Mom and Dad – ha!) This frustrating and mysterious experience of finding just the right drug for stopping epileptic seizures is really beyond a tricky thing. What works for one person, destroys another person. What once worked for years for a person with epilepsy, all of the sudden stops working, with no sensible explanation nor apology.

Thank you for your love and for your prayers. I feel them. I was praying and I was sobbing in the hospital chapel this morning, and then all of the sudden I was washed over with the most calming, beautiful sense of peace. This feeling was lovely and comforting and overwhelmingly awesome, all at the same time. I felt everyone’s presence besides my own, alone in the quiet, solemn chapel. Thank you. Thank you. Thank you. As you can imagine, I have prayed since the day that my son was diagnosed with epilepsy, for this disorder in him, to be healed forevermore. I have tried bargaining with God. I have tried doing good and charitable deeds to be “worthy” of his healing, despite my strong belief in God’s non-judgmental grace. Honestly, I have tried Jedi mind tricks. I am embarrassed by some of the avenues which I have desperately explored, to make this nightmare go away for my son, and for our family. My angel box is filled with little pieces of paper with the same prayer, “Please heal my baby.” Some of these papers are now aged and faded. I have been praying for this miracle, for seven years, since we first got my son’s epilepsy diagnosis. Still, for reasons that I don’t comprehend, my son’s stubborn affliction remains. But yet, at the same time, I remind myself that I have never really questioned why I have been remarkably blessed in so many other aspects of my life. I never question why my family has excellent health coverage which pays for emergency drugs that halts our son’s seizures while they are happening. Many people with epilepsy do not have access to these cutting edge drugs and providers. Without insurance, these drugs cost $1300 per single use. I know how privileged I am. When your heart is exposed to such worry and anxiety and fears about your own child’s well-being, you can’t help but realize how many other parents are going through their own personal agony, dealing with their own children’s afflictions, and on top of all of this pain and fear, they have money worries, and lack of resources to provide their children with the best care available. Many people are experiencing this heartache alone. I have a loving husband whose strong arms I rest in, every night, who shares my pain and yet comforts me with his deep, knowing stares. I have family and friends who support us, and lift us up, with their love and their concern. When my heart bleeds for my son and our family, the bleeding continues to pour out, for all of us parents who are hurting for our children, who sadly, we do not have the power to heal by ourselves. That’s not how mothering (parenting) is supposed to work. I am supposed to be able to kiss every boo-boo away, with a sense of power and ease and nonchalance. I hate every single one of our hospital stays, because every door that I pass as I walk on to our room, holds a room full of pain and fear and yet also a desperate hope, for a family that feels helpless, fearful, dejected and pained. I know their pain intimately, and I wish that I could stop it for every one of us. I wish that I could stop the bleed for all of us, but my heart’s tourniquet is overwhelmed.

Trying to catch my breath and to restore my sense of sanity, I was walking on the medical campus of the renowned hospital where I spent my time this weekend, and there, I spied an incredibly beautiful, old, and glorious tree, reaching out and shading the playground provided for hospitalized children – those young ones, who are still well enough to still go outside and play. I looked at her – the wise and stable tree. I touched her beautiful, cragged bark, knowing that I was touching a vital and living being, older and wiser, than I will ever be. I thought to myself, “There is a poem growing here, perfect for a Soul Sunday on the blog.” And I started to search my mind for the poem. And then I suddenly realized that I didn’t need words for the poem. The splendid, formidable, rooted tree was the poem, just in her being. Her fortitude and her vitality shades and protects her precious fragile charges. She does what she can do, and she takes her job seriously. She stays rooted and strong, and she continues to grow, in order to provide for her charges, with what she has to give. She does what she can, and knows that this enough. Other forces, higher than her tallest, reaching branches, will take care of the rest of what needs to be done. And in the meantime, the tree just does what she can, providing some oxygen to breathe, and some shade and some protection, for those who seek comfort under her solid canopy of restless leaves.

Are you passing on love or are you passing on pain? Heal your pain and pass on love.