Epilepsy Awareness Day

MY FAMILY ~ MY LIFE ~ MY LOVES: March 2013 | Epilepsy facts, Epilepsy  awareness month, Epilepsy awareness quotes

My regular readers know that our youngest son has epilepsy. Last fall, we were working on finding a combination of medications that would keep his seizures at bay, and yet have fewer side effects. (Epilepsy medications have a great amount of side effects. They are essentially medications that affect the brain and many other major organs in the body.) From July until Thanksgiving of last year, my son was averaging having at least one major seizure a week. I cannot begin to explain how awful and scary and painful this experience was for our son, and for our family. Luckily, we found a combination of three medications that are currently working to keep our son seizure-free. Some people never find medications that work. Some people with epilepsy suffer several seizures a day. It is a terrifying condition. My mind has often gone to the Ukrainians who have epilepsy and other major medical conditions, who have no access to their medications. It is so wrong that this is happening to them, on so many levels. I cannot even begin to fathom what they are going through.

If you search “epilepsy” on my blog you can read more about our story. If you are so inclined, please give a donation to the Epilepsy Foundation. This organization is the leader in funding research for hopefully one day finding a cure for this deadly condition.

Thank you for your continued love and prayers and concern for my son and for our family.

Are you passing on love or are you passing on pain? Heal your pain and pass on love.

Epilepsy Awareness Month

Credit: Epilepsy Foundation

My regular readers know that our youngest son suffers from a seizure disorder called epilepsy. I won’t be writing much today, because we are headed to yet another appointment with his neurologist, where my son will be getting yet another EEG test (his third EEG in just the last two months). This experience is the hardest situation that our son (and our family) has to live with, and to manage day in and day out, with the knowledge and empathy for the many other people and families, who also have to live with, and manage this devastating disorder. Here are some truths about epilepsy taken from the Epilepsy Foundation’s website:

1 in 10 people will have a seizure and 1 in 26 will develop epilepsy during their lifetime. We need more people to learn seizure first aid to help save a life.

There are 470,000 children in the U.S. living with epilepsy. Kids can change the world by educating those around them.

Epilepsy receives 10 times less funding than other brain disorders. We need to raise funds for care, advocacy, research and education.

This is a link to an excellent resource to best understand how to help a person who is having a seizure:

https://www.epilepsy.com/living-epilepsy/seizure-first-aid-and-safety

The Epilepsy Foundation and CURE Epilepsy are two outstanding organizations working to find cures, and treatments, and funding research, so that people who have epilepsy, have a better chance at living normal, healthy lives. Please consider giving to these organizations when you are making your charity choices. Also please peruse their websites to learn more about, and to understand what people who live with epilepsy go through, while dealing with this deeply frustrating, and debilitating, and sometimes even deadly disorder. Thank you. Thank you. Thank you.

Are you passing on love or are you passing on pain? Heal your pain and pass on love.

Epilepsy Awareness

49 Seizures ideas | epilepsy awareness, seizures, epilepsy

Unfortunately, my youngest son suffered another major seizure last night. He is okay. We are okay. But today is a day for me to be quiet with myself, and with my son, and with my family. We’ll take your prayers and loving thoughts, in buckets. Thank you for your support. xo

Are you passing on love or are you passing on pain? Heal your pain and pass on love.